About Lewis and the Life for Lewis Appeal

About Me.. Lewis Herbert

My name is Lewis Herbert and I was born in 2002. I was diagnosed with West Syndrome at 3 months of age.

This has since developed into a condition called Lennox Gastaut Syndrome (LGS). LGS is a rare and extremely severe form of epilepsy with multiple seizure types. It causes severe global developmental delay.

I can have 100’s of different seizures every day and my condition is resistant to any medication or therapies which have been tried.

I am severely disabled and unable to do anything for myself. I rely on my Mummy and Daddy for all my personal care needs. I require 24hr care on a daily basis and Mummy and Daddy have had to give up work to look after me!.

I cannot walk or talk, but enjoy being out of my wheelchair and wriggling about (in my own unique style) on my soft mats.

I absolutely love multi-sensory environments with lots of lights and sounds (but they must be well padded so I don’t hurt myself!). These environments make me feel happy, content and relaxed. I also love listening to Beyonce!.

I live with my Mummy, Daddy, Sister and younger Brother. I have a wonderful family and lots of people who love me and I love them.

I love listening to music and looking at trees blowing in the wind. Mummy says I have beautiful eyes and this is how I communicate my feelings!. She says my eyes are the gateway to my soul.

I get cross when Mummy and Daddy kiss me, but it's all good fun!.

My favourite film is finding Nemo and Lion King.

Thanks
Lewis

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About Lewis Herbert